Alternating
Darkness and Light
©Kathy Smith: April 1995 - Schizophrenia Digest
At
22, Maurizio Baldini was an aspiring lawyer. A second
year law student in the top quarter of his class at
the University of British Columbia, his life was full
of academic pursuits, social functions, and physical
activities. But nothing prepared him for the devastating
illness that lay ahead.
"It
came right out of the blue, within a matter of days
and without warning," he says. "I started
thinking funny. I would hear the traffic noise outside
where I was living, and I started assuming that it
had some special significance." As he became
more delusional, he thought he might be delirious
with the flu. "I went to bed hoping it would
go away, but it only got worse," he says.
The
next day, he was driving with a friend, a second year
medical student, who noticed that something was wrong.
Baldini tried to hide what was happening to him. He
decided to stay overnight at his friend's house; both
of them had classes to attend the next day. When he
awoke, instead of making his way to the university,
he ended up walking the streets of Vancouver.
"I
thought I was a very important person. I thought it
was possible that I had become Prime Minister overnight,"
he says. "I would get on a bus and get off at
the next stop. I went to church and thought there
was some religious reason why I was sent there."
Throughout the day, he searched the streets for solutions
to the delusions he was experiencing.
Eventually,
he found himself in the back yard tennis court of
someone's home. "I was convinced I had been transported
20 years into the future and that I owned the place."
Subsequently, the police were called. When asked if
he knew who he was and where he lived, he was only
able to provide them with a previous address.
An
ambulance was called for, and Baldini was taken to
the Vancouver General Hospital emergency department.
He was eventually admitted to the psychiatric assessment
unit for observation. While in his room, he became
paranoid and started hearing voices. "I thought
hospitals were places in which you were killed, not
healed," he says.
He
found the voices very frightening; they gave him demonic,
distorted views of reality. "They (voices) had
a lot of meaning. They were saying things to my spirituality.
I couldn't control them by thinking of something different.
They seemed so real."
After
a two-week stay in the hospital, Baldini returned
to UBC. But this time, school was different. Due to
medication, he was sleeping 18 hours a day, which
impaired his concentration. At times it would take
him over an hour to read one page in a textbook. Though
the illness was taking its toll, he continued to pursue
his dream of finishing law school.
With
the help of his doctor, he was able to have his exams
postponed, and in 1978, he graduated from the UBC
Faculty of Law. Shortly thereafter he wrote the bar
exam, but his life had changed dramatically. Since
his hospitalization, he had lost friends, gained weight,
and found himself very depressed and unmotivated.
In
1980, he moved to Victoria where he decided to open
a law practice. By this time, he had been on various
medications for three years. After his doctor explained
that the chances of a relapse occurring might be the
same with or without medication, he decided to try
going without. For the next five years, he lived a
relatively normal life. He got married, had a child,
and continued to practice law. But in 1985, with the
pressures of work and marital difficulties, he fell
ill. Once again he was hospitalized, this time for
a period of six weeks. He had to take medication again,
and it was some time before he adjusted to it. Following
the acute stages of the episode, his marriage ended,
and he gave up practicing law.
Though
it seemed that his life had fallen apart, a positive
new challenge presented itself. He became a founding
member of the Victoria Branch of the B.C. Friends
of Schizophrenics Society, now known as the BC Schizophrenia
Society. He began giving presentations on schizophrenia
at local high schools, which initiated the course
of public education and advocacy he has been involved
with ever since.
Since
1985, he has sat on various consumer committees and
has been instrumental in voicing opinions and recommendations
for consumers in homes, hospitals, and other living
situations. In 1992, he was appointed by the BC Health
Minister to the Board of Trustees for Riverview Hospital,
British Columbia's largest psychiatric institution.
He also sits on the Provincial Mental Health Consumer
Council and is a founding director of ACE (Association
for Consumer Empowerment), a non-profit society activity
centre for persons with mental illness.
With
all the projects Baldini has undertaken in the last
few years, helping to educate people about schizophrenia
brings him the most satisfaction. Since 1992, he has
worked on contract with BCSS as a mental health educator
with the British Columbia Ministry of Health.
Together
with his colleagues, he has traveled throughout BC
giving information about schizophrenia. he has helped
people in many communities to discover the partnership
concept of consumers, families, and professionals
working together toward mental wellness. "The
more people I talk to, the more they realize I am
just a human being with a disorder," he says.
"I encourage people to ask questions for their
own information. It helps put a face on the disease.
During
the past year, due to fewer side effects, Baldini
has stabilized well on his current medication. "Medication
is the primary treatment for schizophrenia. Once the
medication is under control, you can work on the other
areas of your life." He credits his partner of
five years with assisting his emotional well being.
"She has stood by me through the good and bad."
Baldini
says that he is fortunate enough to heed the early warning
signs of an impending episode. "A lot of people
can't see the signs, and that's the scary part. The
disease can be cyclical; relapses can happen any time,"
he explains. "Living with schizophrenia can be
devastating, but people can lead relatively normal lives
between episodes."